WS12.5 The CF-CARES primary palliative care model: a CF-specific structured assessment of symptoms, distress and coping

Journal of cystic fibrosis : official journal of the European Cystic Fibrosis Society(2017)

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摘要
Individuals with CF, regardless of disease severity, face challenges managing symptom burden. Frequently reported symptoms are not consistently associated with distress, suggesting the importance of individualized evaluation. The CF-CARES (Coping, goal Assessment, and Relief from Evolving CF Symptoms) primary palliative care assessment model provides a framework for patients experiencing chronic symptoms to explore interventional options with their clinicians.
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关键词
CF,MGH,PHQ-9,GAD-7,CBT,CF-CARES,ppFEV1,CSSRS
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