PS1-14: Health-Related Quality of Life in Children with Autism Spectrum Disorders: Findings from the Mental Health Research Network Autism Registry Web Survey
Clinical Medicine & Research(2013)
摘要
Background/Aims
Approximately 1 in 88 children in the U.S. is diagnosed with Autism Spectrum Disorder (ASD). ASD is a complex disorder characterized by impairment in social skills, communication, and cognitive and behavioral functioning. In order for policy makers and clinical managers to evaluate new approaches to treating and managing ASD, they need brief comprehensive outcome measures. One approach that could be useful in this context is measurement of health-related quality of life (HR-QOL), which provides a comprehensive picture of health status including an individual’s psychosocial, emotional, and physical wellbeing. This comprehensive approach is particularly important in conditions such as ASD that have multiple impacts on a person’s health. Few previous studies have examined HR-QOL in persons with ASD, and most of these studies have used small samples. The purpose of this analysis is to examine HR-QOL in a group of geographically- and racially/ethnically-diverse children with ASD who are enrolled in the Mental Health Research Network (MHRN) Autism Registry.
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bioinformatics,biomedical research
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