CB7-03: A Diverse Autism Registry for Etiologic and Effectiveness Studies: Prevalence and Demographic Characteristics.

Clinical Medicine & Research(2012)

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摘要
Background/Aims Diagnoses of Autism Spectrum Disorders (ASDs) continue to rise, yet few effectiveness studies of autism treatments exist. The major limitations to conducting such studies include locating, characterizing, and enrolling sufficiently large and representative ASD patient samples. This project has created a large, comprehensive, and dynamic ASD registry across five integrated not-for-profit health systems participating in the NIMH Mental Health Research Network (MHRN). This registry will enable rapid identification and enrollment of patients into large-scale studies investigating treatment interventions as well as pharmacogenomic and etiologic hypotheses.
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关键词
bioinformatics,biomedical research
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