National rare diseases registry in Spain: pilot study of the Spanish Rare Diseases Registries Research Network (SpainRDR)
Verónica Alonso,Ignacio Abaitua,Óscar Zurriaga,Jenaro Astray, Manuel Errezola, Josefa M Aldana-Espinal,Mario J Margolles, Josep Jiménez,Joaquín A Palomar,Milagrosa Santana,Enrique Ramalle-Gomarra,Julián M Ramos, Federico E Arribas,Rufino Álamo,Gonzalo Gutiérrez-Ávila, Antònia Galmés,Miguel García-Ribes,Carmen Navarro,Eva Ardanaz,Manuel Posada de la Paz Orphanet Journal of Rare Diseases（2014）
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biomedical research,bioinformatics
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