A study protocol for a pilot RCT of a structured education programme (DESMOND-ID) for adults with intellectual disabilities and type 2 diabetes

Aim: To adapt a self-management T2D education programme that has been developed for the non-disabled population (DESMOND) for adults with ID and their carers.Method: Two iterations of the DESMOND programme were delivered to thirteen adults with ID and eight carers. This programme was delivered over six-weeks. Video recordings, focus groups and evaluation sheets were used to examine the suitability of the curriculum and resources. Results: The feedback from the first iteration of the programme illustrated that DESMOND needed to be adapted to accommodate the adult’s literacy skills. The service users also required the support of their carers to develop the skills to self-manage their diabetes at home focusing on diet, exercise and medication. The second iteration of the programme supported the adaptations that have been made to the DESMOND-ID programme. Carers need a separate day to prepare them to engage effectively to help support the adults to learn the objectives of the DESMOND-ID programme. Conclusion: Adults with ID can be educated to develop the skills to self-manage their T2D. It is important to have the support of carers. Such self-management programmes developed for the non-disabled population need adapting and testing for adults with ID.