Forty-Five Years of Duchenne Muscular Dystrophy in The Netherlands

J C Van Den Bergen,H B Ginjaar, A J Van Essen,R F Pangalila,I J M De Groot,P J Wijkstra,Marianne Zijnen,Nicolle Cobben,M J Kampelmacher,B H A Wokke, I F M De Coo,Johanna M Fock,Amc Horemans,M Van Tol,E Vroom, M E B Rijlaarsdam,C S M Straathof,E H Niks,Jan J G M Verschuuren

Journal of neuromuscular diseases（2014）

引用 43|浏览21

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摘要

The current study gives detailed information about the disease course of DMD patients, provides evidence for the positive effect of steroid treatment and mechanical ventilation and supports the use of patient registries as a valuable resource for evaluating improvements in care.

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