Abstract 86: Methodological Issues in Telephone Interventions for Stroke Survivors and Family Caregivers

Background: Post-stroke follow-up interventions are increasingly delivered by telephone. Though many studies report comparable outcomes for phone and in-person delivery, little is reported regarding the feasibility of using this technology in stroke. Purpose: We report positive and negative aspects of phone interventions in two ongoing stroke studies, including strategies to overcome limitations Methods: Study A is comparing a tailored phone intervention with an active listening phone intervention for 254 stroke family caregivers. Study B is comparing tailored in-person versus phone interventions in 100 stroke survivors. Researchers in both studies identified facilitators and barriers to using the telephone. Results: Advantages of phone delivery included ease of access for both caregivers and survivors, less time commitment, and no pressure to present a good appearance (of the home or self). Study A sessions averaged 30 minutes for the tailored intervention versus 16 minutes for active listening. Caregiver rapport was easily established with both interventions. Nurses expressed relief that the study was conducted by phone given the number of rescheduled appointments. Study B phone sessions were shorter than in-person (25 minutes vs. 35-40). There were particular challenges for survivors who had expressive language difficulty, and motor deficits made it hard for some to hold the phone. Hearing deficits posed difficulty, as well as background noise and the lack of ability to “see” nonverbal cues. Investigators used speaker phones when possible for persons with limitations and also recorded conversations to further interpret responses. Conclusions: Though telephone delivery poses some challenges, these can be overcome. For stroke caregivers, advantages clearly outweigh the disadvantages, though for stroke survivors, speakerphones and/or videoconferencing may improve quality. Further research using telephone technologies needs to be conducted, particularly in today’s cost-sensitive health care environment where in-person delivery methods are increasingly under scrutiny.