Treatment adherence and transitioning youth in pediatric multiple sclerosis.

Multiple Sclerosis and Related Disorders(2014)

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摘要
•Recognize that pediatric MS patients transitioning into adult care are a vulnerable group of patients.•Non-adherence was reported in 37% of patients versus 30% of parents of teenagers with MS.•Patients reported the most common cause for non-adherence as forgetting to take their medication (reported in 50% of patients versus 33% of parents).•Young patients with higher disability and worse cognitive functioning may be the ones with more difficulty transitioning to adult care.•Some discrepancies occur between parent and patient reports of non-adherence and other self-management skills.
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关键词
QOL,DMT,UCSF,Ped QOL,TRAQ,HCAQ,SES,SDMT,EDSS
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