Monitoring outcomes in children with acquired brain injury: a Persian validation study of Child and Family Follow-up Survey

BACKGROUND: The aim of this study was to translate and validate the Child and Family Follow-up Survey (CFFS) in Iran. METHODS: Forty-nine cases with acquired brain injury (ABI), and 30 healthy children were included and the CFFS was completed. The Pediatric Quality of Life Inventory (PedsQL) also was completed. The internal consistency, test-retest reliability, known groups comparison and criterion validity were assessed. RESULTS: The mean age of participants was 10.9 years. Cronbach's alpha coefficients were Child and Adolescent Scale of Participation (CASP) (0.91), Child and Adolescent Factors Inventory (CAFI) (0.90) and Child and Adolescent Scale of Environment (CASE) (0.89). Reliability, validity and correlation of CASP and CAFI showed satisfactory results. Significant correlations among the three CFFS subscale scores were observed. These scores were also significantly correlated with the total scores of the PedsQL. The CONCLUSIONS: The findings suggest that CFFS is a valid measure to monitor long-term outcomes of children and young adolescents with ABI.