Understanding the experience of living with spinal muscular atrophy: a qualitative description

The Journal of neuroscience nursing : journal of the American Association of Neuroscience Nurses, Volume 40, Issue 4, 2008, Pages 250-256.

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Abstract:

Spinal muscular atrophy (SMA) is an autosomal recessive motor neuron disease caused by the progressive degeneration of motor neurons in the spinal cord. The disorder causes weakness and wasting of voluntary muscles. The purpose of this study was to describe the experience of living with SMA. Strategies used to manage symptoms and progress...More

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